AIM-AHEAD Datasets and Analysis Platforms
OCHIN
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EHR data from underserved communities
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HIPAA limited dataset, individual-patient level data with dates and geographic indicators if needed for research
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Subset of ~6M EHR
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AWS
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A variety of datasets available including clinical and genomic data
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Public data, and controlled access data (depends on dataset)
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MedStar Health
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MedStar Health Research Institute hosts a robust database of Electronic Health Records which can be made available to approved AIM-AHEAD awardees. The MedStar Health System includes an extensive network of clinical facilities in the mid-Atlantic region, including 10 hospitals (33% rural hospitals) and includes over 300 points-of-care connected by MedStar’s EHR system, built on the Cerner Millennium platform. Project-specific datasets can be curated and made available for AIM-AHEAD Awardees. Additionally, the AADB has curated a library of AI/ML-ready datasets which are fully de-identified and ready for access upon regulatory clearance.
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Multiple curated dataset options pre-curated or custom curated de-identified EHR, Limited Dataset, Full PHI EHR dataset, Imaging, Select clinical notes, select genomics data, synthetic data.
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Pre-curated datasets and custom-curated datasets of varying sizes. Curated from the EHR with over 5 million patient records.
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NIH All of Us
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The All of Us Research Hub stores health data from a diverse group of participants from across the United States
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616,000+ Participants; 360,000+ Electronic Health Records; 444,000+ Biosamples Received
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NHLBI BioData Catalyst
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Selected large-scale cohorts related to heart, lung, blood and sleep disorders. Includes both prospective clinical studies and associated genomic TOPMED data.
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De-identified dataset. Including individual level genomic (TOPMED full genomes) and clinical datasets
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List of studies : 60+ studies are available to choose from
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NHLBI BioData Catalyst PIC-SURE and Seven Bridges Platforms
ScHARe
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ScHARe is a cloud-based research collaboration platform developed by the National Institute on Minority Health and Health Disparities and the National Institute of Nursing Research.
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Google-hosted Public Datasets; ScHARe-hosted Public Datasets; ScHARe-hosted Project Datasets
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