AIM-AHEAD Datasets and Analysis Platforms
DATASET
DATA
DATA TYPES
SIZE
EHR data from underserved communities
HIPAA limited dataset, individual-patient level data with dates and geographic indicators if needed for research
Subset of ~6M EHR
ANALYSIS PLATFORM
DATASET
DATA
DATA TYPES
SIZE
Multiple curated dataset options (further detail on website ) pre-curated or custom curated de-identified EHR, Limited Dataset, Full PHI EHR dataset, Imaging, Select clinical notes, select genomics data, synthetic data
Pre-curated datasets and custom-curated datasets of varying sizes. Curated from the EHR with over 5 million patient records.
ANALYSIS PLATFORM
DATASET
DATA
DATA TYPES
SIZE
Selected large-scale cohorts related to heart, lung, blood and sleep disorders. Includes both prospective clinical studies and associated genomic TOPMED data.
De-identified dataset. Including individual level genomic (TOPMED full genomes) and clinical datasets
List of studies : 60+ studies are available to choose from
ANALYSIS PLATFORM
NHLBI BioData Catalyst PIC-SURE and Seven Bridges Platforms
DATASET
DATA
DATA TYPES
SIZE
A variety of datasets available including clinical and genomic data
Public data, and controlled access data (depends on dataset)
ANALYSIS PLATFORM
DATASET
DATA
DATA TYPES
SIZE
The All of Us Research Program is building one of the largest biomedical data resources of its kind.
The All of Us Research Hub stores health data from a diverse group of participants from across the United States
616,000+ Participants; 360,000+ Electronic Health Records; 444,000+ Biosamples Received
ANALYSIS PLATFORM
DATASET
DATA
DATA TYPES
SIZE
ScHARe is a cloud-based research collaboration platform developed by the National Institute on Minority Health and Health Disparities and the National Institute of Nursing Research.
Google-hosted Public Datasets; ScHARe-hosted Public Datasets; ScHARe-hosted Project Datasets